Caregiver Resources for Care Management | Novartis

How We Support Caregivers

Novartis is committed to helping health care providers support caregivers with a variety of on-demand and downloadable resources that detail the phases of the caregiving journey, share medication lists and supportive exercises, and more.

Cancer Caregiver’s Guidebook

Cancer Caregiver’s Guidebook Oral Oncology Patient Assistance Spanish Resources

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Cancer Caregiver’s Guidebook

Cancer Caregiver’s Guidebook Oral Oncology Patient Assistance Spanish Resources

Cancer Caregiver’s Guidebook

Caregivers play an important role in oncology care. The Cancer Caregiver’s Guidebook is available as a web-based digital book and a 7-chapter audiobook designed to support families and partners throughout their caregiving journey.

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Cancer Caregiver's Guidebook

This guidebook is designed to give patients and caregivers insight into the cancer caregiving journey through helpful information, strategies, and support.

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Cancer Caregiver's Guidebook Print Flashcard

This printable flashcard provides an overview of available Cancer Caregiver’s Guidebook offerings along with QR codes to access the web-based digital book and audiobook by chapter, as well as other informative resources.

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Cancer Caregiver's Guidebook Digital Flashcard

This flashcard provides an overview of available Cancer Caregiver’s Guidebook offerings, including how to access the web-based digital book and audiobook by chapter.

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Additional Resources

The Cancer Caregiver's Audio Guidebook: Introduction

This introduction to The Cancer Caregiver's Audio Guidebook provides caregivers with an overview of the cancer caregiving journey, from confusion to acceptance.

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The Cancer Caregiver's Audio Guidebook: Phase 1 - Confusion

Phase 1 of The Cancer Caregiver's Audio Guidebook offers resources, suggestions and exercises such as "improve the moment" to support caregiver well-being during the first phase of their journey.

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The Cancer Caregiver's Audio Guidebook: Phase 2 - Realization

Phase 2 of The Cancer Caregiver's Audio Guidebook provides a "Caregiver’s Bill of Rights" and supports caregiver well-being with exercises like "looking at the glass half-full."

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The Cancer Caregiver's Audio Guidebook: Phase 3 - Frustration

Phase 3 of The Cancer Caregiver's Audio Guidebook explains how frustration is part of the caregiving journey, offering suggestions, exercises and self-assessment tools to support caregiver well-being.

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The Cancer Caregiver's Audio Guidebook: Phase 4 - Acknowledgement

Phase 4 of The Cancer Caregiver's Audio Guidebook offers helpful resources like a medication list, and supportive exercises such as "growing gratitude."

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The Cancer Caregiver's Audio Guidebook: Phase 5 - Collapse

Phase 5 of The Cancer Caregiver's Audio Guidebook talks about "collapse" as part of the caregiving journey, with recommendations regarding local cancer caregiver support groups, as well as support for caregiver well-being.

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The Cancer Caregiver's Audio Guidebook: Phase 6 - Acceptance

Phase 6 of The Cancer Caregiver's Audio Guidebook explains how acceptance is part of the caregiving journey, and recommends practical services to help with things like meals and transportation.

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Oral Oncology

During treatment with oral oncology medications, health care providers, patients, and their caregivers may benefit from educational and support resources specific to navigating care with oral oncology medications, which may be different from other forms of oncology treatment.

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Considerations for Giving Care to Patients With Cancer

This caregiver checklist provides information and resources on caring for patients with cancer.

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Oral Oncology Medication Toolkit for Patients and Caregivers

This collection of tools for patients and caregivers includes an oral oncology fact sheet, a question guide for discussing oral oncology treatments with providers, and a practical therapy tracker.

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Keeping Track of Your Therapy

This downloadable calendar can help patients and caregivers keep track of their therapeutic schedule.

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Additional Resources

Understanding the Treatment Plan: Questions for Your Health Care Team

This resource provides examples of questions patients and caregivers may want to ask when meeting with their health care team, and helps them gather important information about medications.

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Oral Oncology Medication Tools for Patients and Caregivers

This collection of tools for patients and caregivers includes a fact sheet, question guide, and practical therapy tracker.

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Considerations to Help You Adhere to Treatment

This checklist for patients and caregivers regarding adherence to an oral oncology medication treatment plan.

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Start Right and Stay on Track With Your Oral Cancer Medicine

This fact sheet helps patients and caregivers start right and stay on track with oral cancer medications.

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Patient Assistance

The single source for patient support throughout the Novartis Oncology experience.

Novartis Oncology Patient Support

A website focused on support for patients and caregivers. This site includes financial assistance options to help patients get access to the treatments they need, as well as personalized support programs, many of which offer one-on-one assistance.

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Recursos en Español

Los cuidadores juegan un papel importante en la atención oncológica. Las herramientas y recursos aquí están diseñados para apoyar a las familias y socios durante su viaje de cuidado.

La Audioguía para Cuidadores de Pacientes con Cáncer: Introducción

Esta introducción a la Audioguía para Cuidadores de Pacientes con Cáncer les brinda a los cuidadores una perspectiva general del recorrido del cuidado contra el cáncer, desde la confusión hasta la aceptación.

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La Audioguía para Cuidadores de Pacientes con Cáncer: Fase 1: Confusión

En la Fase 1 de la Audioguía para Cuidadores de Pacientes con Cáncer se ofrecen recursos, sugerencias y ejercicios como, por ejemplo: “mejorar el momento” para respaldar el bienestar del cuidador durante la primera fase de su recorrido.

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La Audioguía para Cuidadores de Pacientes con Cáncer: Fase 2: Toma de conciencia

En la Fase 2 de la Audioguía para Cuidadores de Pacientes con Cáncer se brinda la “Declaración de derechos del cuidador” y se respalda el bienestar del cuidador con ejercicios tales como “miremos el vaso medio lleno”.

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La Audioguía para Cuidadores de Pacientes con Cáncer: Fase 3: Frustración

En la Fase 3 de la Audioguía para Cuidadores de Pacientes con Cáncer se explica cómo la frustración forma parte del recorrido de cuidado, ofrece sugerencias, ejercicios y herramientas de autoevaluación para respaldar el bienestar del cuidador.

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La Audioguía para Cuidadores de Pacientes con Cáncer: Fase 4: Reconocimiento

En la Fase 4 de la Audioguía para Cuidadores de Pacientes con Cáncer se ofrecen recursos útiles como una lista de medicamentos y ejercicios de apoyo como “gratitud creciente”. 

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La Audioguía para Cuidadores de Pacientes con Cáncer: Fase 5: Colapso

En la Fase 5 de la Audioguía para Cuidadores de Pacientes con Cáncer se habla del colapso como parte del recorrido de cuidado, con recomendaciones como grupos de apoyo locales para cuidadores de pacientes con cáncer, a fin de respaldar el bienestar del cuidador.

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La Audioguía para Cuidadores de Pacientes con Cáncer: Fase 6: Aceptación

En la Fase 6 de la Audioguía para Cuidadores de Pacientes con Cáncer se explica cómo la aceptación forma parte del recorrido de cuidado y se recomiendan servicios prácticos para ayudar con cosas como comidas y transporte. 

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